Patient Stories and Testimonials
My Genetic Counselor: A Master of All Trades
Nov. 8, 2013, was a beautiful fall day until abruptly and tragically it wasn’t. Unexpectedly, my youngest sibling collapsed while raking leaves and died immediately at the age of 54. In the midst of the shock and grief of his loss, his family began a journey into the previously unknown world of a rare genetic heart disease. This world is filled with mystery and anxiety. An excellent local cardiologist in Elkhart, Ind., offered what he could, but he recognized this problem was beyond his scope of practice. Where to go now?